Deafblind Resources

Websites

The Canadian Deafblind Association

This is the national advocacy organization, committed to promote and enhance the well-being of people who are deafblind through: advocacy, the development and dissemination of information and the provision of support to our chapters, members and community partners. The Association promotes:
• Deafblindness as a unique disability
• Lifelong Intervention for Canadians who are deafblind
• Development of programs and services to meet the CDBRA principles and philosophy
• Advocacy for access to services and resources
• Healthy decision-oriented lifestyles     
• Partnerships with individuals, families, foundations, government and non-government agencies.
There are also a number of provincial chapters, including one in Alberta 

Deafblind Resources.ORG 

This is a Canadian website by Niall Brown, a graduate of George Brown College, Intervenor for Deafblind Persons Program, focused on strategies to communicate with individuals who are congenitally deafblind. There are many good, practical resources as well as an Intervenor Portfolio with ideas and photos of calendars, symbols and cues, and Experience Books. The Intervenor Professional Network is an international Internet resource on deafblind communication strategies. It is intended to promote communication between parents, intervenors, paraprofessionals, and anyone working with individuals who are congenitally deafblind, for the purpose of exchanging information and strategies.

The Canadian National Society of the Deafblind (CNSDB)

This is the national consumer-run advocacy association dedicated to helping Canadians who are deaf-blind achieve a higher quality of life.

Intervenor Organization of Ontario (IOO)

This group is comprised of intervenors and is committed to providing advocacy and support on behalf of its members.

British Columbia Outreach Program for Students with Deafblindness

This provincially based program works to assist school districts that are supporting students with deafblindness.  Their website provides information about the Canadian concept of the philosophy of Intervenors / Intervention, educational strategies, and training.

The National Consortium on Deafblindness (NCDB)

This is the United States technical assistance and dissemination center for children and youth who are deaf-blind. Funded by the U.S. Department of Education's Office of Special Education Programs (OSEP), NCDB builds on the technical assistance activities of NTAC (National Technical Assistance Consortium for Children and Young Adults Who Are Deafblind), the information services and dissemination activities of DB-LINK, and adds a third focus related to personnel training. NCDB brings together the resources of three agencies with long histories of expertise in the field of deaf-blindness; the Teaching Research Institute (TRI) at Western Oregon University, the Helen Keller National Center (HKNC), and the Hilton/Perkins Program at Perkins School for the Blind. NCDB works collaboratively with families, federal, state and local agencies to provide technical assistance, information and personnel training. One of their main mandates is to expand the utilization of information resources by developing and disseminating accessible products that synthesize evidence-based research, effective practices, and emerging knowledge. The DB-LINK library contains further Internet resources, current research articles, additional publications, NCDB products, and an opportunity for the user to search the NCDB database by desired topic. They also have a section entitled DB 101, designed to introduce children who are deaf-blind. These brief tutorials provide information about the nature of deaf-blindness, the impact of combined vision and hearing loss on communication and social interactions, and the importance of individualized educational strategies and supports.  They also produce a regular Newsletter, Deaf-Blind Perspectives.

JP Das Centre - Minerva Deaf Research Lab (MDRL)

The Minerva Deaf Research Lab (MDRL) is based in the Department of Educational Psychology at the University of Alberta in Edmonton.  MDRL's primary focus is on conducting research relevant to the educational needs of students who are deaf and hard of hearing, including those who are deafblind.  On the MDRL website you will find links to current events, professional development opportunities, information on current research projects as well as an extensive listing of publications from past research.

Texas School for the Blind and Visually Impaired

This resource offers many articles and books, specific to intervenors, many of which can be downloaded.

Perkins School for the Blind

This website has downloadable articles under the section - Teaching Resources such as Deafblindness: Educational Service Guidelines including “Competencies for teachers of students with deafblindness”
It has webcasts with Barbara Miles, sharing her expertise in the areas of communication and touch with students who are Deafblind and several webcasts on CHARGE syndrome, including Perkins Webcasts: “CHARGE Syndrome - The Impact on Communication & Learning” by Martha Majors

Charge Syndrome Foundation

Its mission is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.

California Deaf-Blind Services

CDBS serves individuals who have hearing and vision problems, with or without additional disabilities.
They have a number of online videos – an introductory module about interveners for paraeducators, family members, teachers, administrators as well as ones on the role of members of the team.  They have a cochlear implant research project, specifically for children with deafblindness, a newsletter and many downloadable fact sheets.


Deafblind International (DbI)

DbI is the world association promoting services of Deafblind people, bringing together professionals, researchers, families, deafblind people and administrators to raise awareness of deafblindness to support the development of services to enable a good quality of life for deafblind children and adults of all ages.

SENSE

Sense in the United Kingdom is the national charity that supports and campaigns for children and adults who are Deafblind, providing expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them. They also support people who have sensory impairments with additional disabilities. They have a number of publications, many of which are downloadable.

University of North Carolina - School of Medicine

As part of their Center for Literacy and Disability Studies, UNC offers a resource page on the deaf-blind classroom model.  This page includes information on shared reading, predictable chart writing, and emerging literacy skills, in addition to many other applicable content areas.

Dr. Jan van Dijk

Dr. van Dijk is of one of the leading experts in the field of deafblindness.  His website is extremely interactive, allowing users to participate in forum discussions, subscribe or place messages on the site's Wall, and form discussion groups with those who have similar interests.